HOSPITALIZED AGAIN! Sept 26-29th ... SHE CAN'T STOP VOMITING...

We could not stop her from vomiting now anything she had in came out immediately. EVEN WATER!!! I called her local ped. and they told me to call her neurologist, and they told us to drive to Iowa CIty ASAP!

Blood work showed she was too "ketotic", to help her from throwing up they prescribed her strong anti-acid medication and continued using the increased dosage of Poly k-crystals. She was under IV and did not eat for 2 days, they prepared the KetoCal formula but she hated the taste.

On the second day she appeared to be hungry, so we gave her a little bit of hotdog, she ate it so fast but her body still threw it back up she could not control this. It was scaring her.

When I told them I have been syringing her cream Dr.Joshi was upset and said I was regressing her learning in eating. But I rebuttal by saying it was the only way I can get her to drink/taste the cream.

She came back and advised me to deeply consider a G-TUBE.

NO! I DID NOT WANT MY DAUGHTER TO HAVE SOMETHING MORE TO SET HER ASIDE FROM THE "NORMAL" CHILDREN. PLUS I HATE THE IDEA OF SCARS ON MY BABY!!!!

But since she couldn't intake any of her food I had no option but to accept it. Since there was no slot for an operation on Aliyah's G-tube they scheduled us for next week to have the G-tube implanted on my baby.

I felt useless.... my poor baby is going through so much.

Even though she was going though so much this was around the time she was calling for me... calling me.. "mama" ...

I may be smiling in this picture but believe me I feel desperate and unstable.... But around Aliyah, I have to put my best face out for her. 

Blood clots..... Sept 23.2011

Aliyah has received her flu shot. After being one week and a half of being seizure-free, 15 minutes after her influenza shot she began to seize again, first time in the glorious 1.5 weeks of being seizure free.

Also she began to throw up her meals. It first started up she was gagging. She then did not want to eat anymore. Yes. I did "force" fed my daughter. I needed the diet to be just right!!!! :(

Damn the hot dogs and damn the cream. :( I loved the results it gave Aliyah but she was throwing u all of her meals for 3 days straight. And to top everything else off we found little blood clots in her urine. I called the doctor's office, of course the nurse told me to keep a close watch. Again another blood clot in her diaper. This time we rushed to the hospital.

There they took an x-ray which what the pediatric feared to have seen kidney stones. So then Aliyah was ambulanced from Mary Greeley to the University of Iowa Children's Hospital. They had put a bag to collect urine to collect sample, by the time we arrived about 1.5 hrs later, we saw another blood clot a little less than a quarter size.

They ran some blood work and checked to see if Aliyah had passed a kidney stone.

Urology and G.I. both came back and told me they saw nothing but Neurology told me they did see two small spots as did the pediatric back in our home town. But I went with the specialist had to say. What they did do for us was TOOK ALIYAH OFF OF TOPOMAX because it increasing her chances of developing more stones and INCREASING THE DOSE OF CITRAE POLY-K CRYSTALS since in her blood work and urine samples it showed Aliyah was losing much of her calcium intake out in her urine, increasing the dose will help in maintaining it in her body. We were then discharged, they told us not to push her eating. She did eat sometimes but I no longer force fed her because she would have thrown up.