We could not stop her from vomiting now anything she had in came out immediately. EVEN WATER!!! I called her local ped. and they told me to call her neurologist, and they told us to drive to Iowa CIty ASAP!
Blood work showed she was too "ketotic", to help her from throwing up they prescribed her strong anti-acid medication and continued using the increased dosage of Poly k-crystals. She was under IV and did not eat for 2 days, they prepared the KetoCal formula but she hated the taste.
On the second day she appeared to be hungry, so we gave her a little bit of hotdog, she ate it so fast but her body still threw it back up she could not control this. It was scaring her.
When I told them I have been syringing her cream Dr.Joshi was upset and said I was regressing her learning in eating. But I rebuttal by saying it was the only way I can get her to drink/taste the cream.
She came back and advised me to deeply consider a G-TUBE.
NO! I DID NOT WANT MY DAUGHTER TO HAVE SOMETHING MORE TO SET HER ASIDE FROM THE "NORMAL" CHILDREN. PLUS I HATE THE IDEA OF SCARS ON MY BABY!!!!
But since she couldn't intake any of her food I had no option but to accept it. Since there was no slot for an operation on Aliyah's G-tube they scheduled us for next week to have the G-tube implanted on my baby.
I felt useless.... my poor baby is going through so much.
Even though she was going though so much this was around the time she was calling for me... calling me.. "mama" ...
I may be smiling in this picture but believe me I feel desperate and unstable.... But around Aliyah, I have to put my best face out for her.
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