We panicked and contacted her specialist, he arranged another 24 hr EEG.
Her EEG showed no epilepsy and still some abnormality activity on her left brain.
I should mention two weeks prior to this 24hr EEG during her weekly doctor's visits she could not move her right arm. Dr. Alsayouf thought it must have been dislocated, x-rays showed it was fine. Three hours later Aliyah was able to move her arm without a problem. Conclusion was that it was a neurological issue. About a week ago Aliyah couldn't move her right leg hours later she was limping, the next day she was able to walk right. Again the doctor said it was a neurological issue, that hopefully in some time with medication and close monitoring it will go away.
Every day I observe my baby girl. Hoping she will turn out to have a normal childhood like her dad's and mine. Before her spams she was full of laughter, always giggling.. always... now she walks around serious runs with curiosity but she is not all back. Dr.Alsayouf spoke about how her IS may come back and for that we must be prepared and always be on guard. I really do wish I was the one being hurt by those then my little angel, I would give anything and everything I have to have remove that awful experience for her.
Everything my little girl does I observe and examine if it was something normal a 17 month old would do. I hope her Infantile Spasms never come back. I pray for other children and their families. For me as the parent it was horrible, living in a nightmare, even today I still think and without wanting to I find myself re-entering into the thoughts & flashbacks of that experience.
