Emergency (Oct 2010)

A week prior to her ped.'s appt. we took Aliyah to a bowling alley to meet up with her grandparents. Aliyah did not like the environment. She spent over 20 mins crying and then kept on sticking her finger into her mouth. This eventually led her to throw up. Sean and I panicked and took her to the emergency room. It was there where we decided to share some of Aliyah's odd behavior and explained to the doctor how she would twitch/squint part of her face, then lose motor control of her neck causing her head to drop, how her muscles would tense up, and how she would cry out as if she was in great pain.

He then sent out blood work to be done and urine sample to be collected. That same day he ordered a CAT scan to be done that day and an EEG and MRI to be set up by her pediatrician.

the blood work, urine sample, and CAT scan all turned up to be normal.

Because of insurance problems it was really difficult to set up her EEG and MRI. An EEG was done 4 days later an confirmed my daughter was experiencing seizures. Her pediatrician called to arrange and earlier appt. Once we described Aliyah's actions directly to Dr. Alexander she knew it was a neurological issue. She set up an appt with Dr. Narawong (ped.neurologist specialist) for the following day. Dr. Narawong asked to have Aliyah have another 1 hr EEG done at her hospital. During that appt. Dr. Narawong wanted Aliyah to have a 24 hr EEG done that day and an MRI.

I kept on asking her about seizure treatments but she wanted to make sure she had the right diagnosis for Aliyah. After her 24 hr EEG - Dr.Narawong told us there was no doubt she had infantile spams, and also let us know she had an 70 % chance of having a learning disability.

Her MRI was next, my baby was sedated. The results came back normal. she had no "visual signs" of tumors, tuberculosis, brain damages. Dr.Narawong sent out various types of blood work, all came back normal. There was no known explanation why my baby girl was facing IS.

My husband told me this increased Aliyah's chances of being "normal".