In April 2013 overnight Video EEG report Aliyah had 3 silent seizures, also known as subclinical seizures there was also talk about partial seizures... Aliyah has had those for a while too. You cannot see the subclinical seizures, only through an EEG is it possible to report such seizure activity. They told me these type of seizures are not good for a growing child to have, makes learning difficult for the child. This was while we were only on Sabril (Vigabatrin)... We asked our neurologist if we could get her off of Sabril because it was going to be a year of her on Sabril and we were concerned about it damaging her peripheral vision.
Dr. Bergqvist at Children's Hospital of Philadelphia suggested a good replacement medication is Lamictal.
We are now entirely off of Sabril and on full dose of Lamictal. We were only suppose to do an overnight EEG, but right before Aliyah leads were being "glued" on the EEG tech saw what might have been a subtle myoclonic seizure...... Which is why her EEG lasted 3 days and 2 nights. They were trying to catch another myoclonic seizure, but they didn't..... It was mentioned it might have been her body reacting to having no Sabril in her system, regulating ...
But other than that Aliyah's EEG looked promising, this time she had no Subclinical seizures! But her EEG showed constant discharges.... meaning her brain is in a constant "seizure mode", they explained to me this should not hurt Aliyah's learning potential, it just shows her brain is very prone in having another seizure.
Our instructions were to log and report any more seizure activities.
Dr. Bergqvist at Children's Hospital of Philadelphia suggested a good replacement medication is Lamictal.
We are now entirely off of Sabril and on full dose of Lamictal. We were only suppose to do an overnight EEG, but right before Aliyah leads were being "glued" on the EEG tech saw what might have been a subtle myoclonic seizure...... Which is why her EEG lasted 3 days and 2 nights. They were trying to catch another myoclonic seizure, but they didn't..... It was mentioned it might have been her body reacting to having no Sabril in her system, regulating ...
But other than that Aliyah's EEG looked promising, this time she had no Subclinical seizures! But her EEG showed constant discharges.... meaning her brain is in a constant "seizure mode", they explained to me this should not hurt Aliyah's learning potential, it just shows her brain is very prone in having another seizure.
Our instructions were to log and report any more seizure activities.
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