Hoping for the Best (late Oct 2010- late Nov 2010)

At first we did not see much improvements in Aliyah's head drops, so Dr. Alsayouf increased the dosage on her prednisolone medication. About 2 days later we notice a decrease in the amount of head drops. We slowly saw the head drops diminish yet still saw her squint her eyes, but eventually that also went away. Aliyah was highly irritable and did not interact much with others, but this was the price she had to face in order to attack her IS.

He then decided to decrease the prednisolone every week until the medication is low enough to ween her completely off along with the other medications except her daily dose of 50 mg topomax.

He was very impressed how responsive Aliyah was with the medication given to her. He let us know how fortunate we are after telling us her EEG showed no signs of infantile spasms. He could not guarantee us a normal childhood for Aliyah but at least we know she is doing better than before.

He let us know about the abnormal activity on her left brain, but kept on telling us to be grateful her EEG shoed no signs of IS.